Challenges in nurturing HFASD teens: Emotional crises and expectations of mothers in Malaysia

Shima Dyana Mohd Fazree    -  Centre for Research in Psychology and Human Well-being, Faculty of Social Sciences and Humanities, Universiti Kebangsaan Malaysia, Selangor, Malaysia
Nur Saadah Mohamad Aun*    -  Centre for Research in Psychology and Human Well-being, Faculty of Social Sciences and Humanities, Universiti Kebangsaan Malaysia, Selangor, Malaysia
Siti Marziah Zakaria    -  Centre for Research in Psychology and Human Well-being, Faculty of Social Sciences and Humanities, Universiti Kebangsaan Malaysia, Selangor, Malaysia
Abdul Rahman Ahmad Badayai    -  Centre for Research in Psychology and Human Well-being, Faculty of Social Sciences and Humanities, Universiti Kebangsaan Malaysia, Selangor, Malaysia
Tuti Iryani Mohd Daud    -  Department of Psychiatry, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
Idayu Badilla Idris    -  Department of Community Health, Faculty of Medicine, Medical Centre, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia

(*) Corresponding Author
DOI: 10.21580/pjpp.v8i2.17078
The transition to young adulthood brings distinctive challenges for high-functioning autism spectrum disorder (HFASD) children and their families, especially post-formal education. This qualitative case study research aims to explore hurdles faced by mothers navigating HFASD adolescents. The result shows that financial strain, stigma, and loneliness loom large, compounded by emotional crises tied to uncertainty and stress about their children's future. Mothers advocate for multiple work opportunities and independence, underscoring a notable gap between HFASD teens' needs, available services, and community resources. The study enlightened mothers and inspired proactive measures, emphasizing the imperative for a collective, interdisciplinary effort to align services comprehensively—addressing residential, employment, and social aspects—to enhance the quality of life for HFASD individuals.

Keywords: adolescents; high-functioning autism spectrum disorder; mothers; nurturing; teenager

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